Friday, May 2, 2008

Back Online Alas


Well the internet connection where I'm staying at the Cleveland Sight Center turned out to be less than reliable. And here I thought I'd be one of the few people using it at night! Anyway, sorry for the delay in posts.

Tonight, after two full weeks of inpatient physical therapy, etc., Samantha returnd to the apartment with me where we'll enjoy a busy weekend together before the next week of outpatient therapy. Tomorrow we go to the Great Lakes Science Center, the Cheesecake Factory, and a funky mall in University Heights. Sunday we hit the Cleveland Zoo. I'm trying hard to keep Sam's rigorous 9-hour-a-day exercise regimen going since it's a crucial part of her recovery.

On the whole, she's doing great at managing her pain. Vicodin, Tylenol 3 with Codeine, and Ultram (all pain killers) are still commonly taken, but the usage of the Vicodin has decreased a great deal for which I am truly grateful. The bad news is her memory problem seems to get worse and worse. We saw the head adolescent psychiatrist (bad pun I know) for Cleveland Clinic who referred to Sam as a complex medical case that even Cleveland Clinic may not be able to fully "fix". He deytermined that depression, stress, sleep deprivation, and meds were not players in the problem and said we MAY need to got to Providence (Brown University) or Boston Children's Hospital where the pain/memory link is more thoroughly researched and treated. Ugh. But hey, at least there's hope.

I'm so impressed with how much exercise Sam is capable of doing. She's a lot stronger than she looks. She has a massive fitness program to continue once she gets home too. Even if she weren't in pain, it'd be a wise undertaking.

I also want to thank everyone for the cards, pictures, letters, flowers, etc. You really brought smiles to our faces! More to come...

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